The launch of The Dawson Schleroerma Foundation at Carlton Hotel on October 6, 2010 in New York City. (Photos by Anna Kuchma)
Swizz Beatz and Courtney Dawson by Anna Kuchma |
Model Jaslene Gonzalez with David Meister |
Scleroderma is a debilitating and too often fatal auto-immune disease that affects 300,000 people across our country. Scleroderma itself means "hard skin". The hardness is caused by increased production of collagen and other proteins that cause skin thickening and replaces normal skin structure with scar tissue. Scleroderma can be a devastating disease and the same thickening process may occur in the blood vessels, the lungs, the kidneys, the intestinal tract and other key organs.
Research over the last two decades has lead to improved treatment for scleroderma and has improved both survival and function for individuals with this disease. While this improvement is welcome, the fact is there is no cure and that individuals continue to be disabled and die from the disease. Those with widespread skin and organ involvement have a negative prognosis with life expectancy 5-10 years after diagnosis.
ABOUT COURTNEY DAWSON
COURTNEY DAWSON |
Living with Scleroderma is a fight that has no ending. I have always been a competitor, having played sports in high school and college, so I love to fight…win or lose. But it doesn’t work like that with this disease. I can’t psyche myself up by saying “Ok, I am going to fight this disease, win or lose”. Scleroderma doesn’t allow you to win, then share the victory with your loved ones and continue on with your life. The only thing you can do is build a solid platform to stand on and prepare to fight for the rest of your life. It is a battle without an end.
There has been a positive side, however, to facing life with this disease. I can honestly say that I have lived more of my life in the last 3 years than all the previous 30 combined. I am so thankful for the circumstances that surround my life now and I truly feel ALIVE…really, really alive.
Now I hope to give that peace and serenity to others suffering from this disease. I want to empower them with the tools to fight this fight and to cope with this disease the best way possible, -to bring joy back into their lives. This, in turn, will do the same for me.
Slide show photos from the rest of the night
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